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DiscussionCIDP, While I am waiting for the tests, genetic?
Neuropathy | Last Active: Sep 17, 2023 | Replies (44)Comment receiving replies
Replies to "Took 12+ years to diagnose my CIDP. After three back surgeries and a neck fusion. No..."
I’m glad you had success with your IVIG infusions, as they did not help me at all.
I might be starting a new infusion soon, and will let you know how it works.
@overeazy wow! You have been through so much. I’m glad that you’re feeling better now. Your story gives me hope.
Unfortunately, I watched my dad struggle with this, but it helped me recognize the disease in myself. I’m still working with my neurologist to get a “team” around me for P/T, Pain Management…
Thanks for sharing your experience.