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CIDP, While I am waiting for the tests, genetic?
Neuropathy | Last Active: Sep 17, 2023 | Replies (44)Comment receiving replies
Chronic Inflammatory Demyelinating Polyneuropathy-Fingers Are Bending
The fingers of my left hand have begun to move in different directions even when my hand is at rest. I am assuming this is because the muscles in my arm are not getting the correct signals from my brain? My left forearm is achy. It has become difficult for me to pick up something small like a puzzle piece with my hand. Chronic Inflammatory Demyelinating Polyneuropathy has quickly turned my life around. I’m going to see my neurologist today for further evaluation.
Replies to "Chronic Inflammatory Demyelinating Polyneuropathy-Fingers Are Bending The fingers of my left hand have begun to move..."
@coachrandy Thanks, I am trying but it feels like I am falling apart so fast.
How long ago were you diagnosed? Are you getting infusions?
I don’t know what they are going to do with me yet.
I have just been diagnosed as well.. My neuro is confident that IVIG infusions will fix it
5 days in hospital then one day a month. I'm hoping
Hello @SusanEllen66. I wanted to bring your recent post on CIDP back into one of your earlier posts to allow for an update to those members who have been following the previous discussion. For that reason, you will see that I have moved your recent post here now:
- CIDP, While I am waiting for the tests, genetic?:
https://connect.mayoclinic.org/discussion/cidp-while-i-am-waiting-for-the-tests-genetic/
How did your neurologist appointment go?
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Hang in there. I am just starting my journey with CIDP so I cannot gibe much advice; I can just encourage you to keep moving and try to be positive as much as possible.