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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@kdubois

My mother (71) and daughter (14) have it, and their diagnoses was primary erythromelalgia. Peripheral neuropathy is one of the symptoms, in addition to chronic dry mouth, Raynaud's, and feet (and sometimes hands) that get very red and hot. I have symptoms of erythromelalgia as well, but I don't have the peripheral neuropathy at this point. I'm hoping to bring my daughter to Mayo's erythromelagia clinic within the next year. Just last week, I watched a video on their web page that explains how to, and how not to, relieve the symptoms of peripheral neuropathy.

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Replies to "My mother (71) and daughter (14) have it, and their diagnoses was primary erythromelalgia. Peripheral neuropathy..."

Where do I find that video? I have neuropathy in my left leg and foot.

Is this the video you were referring to @kdubois?
http://mayocl.in/2gf92tS Mayo Clinic dermatologist Mark Davis, M.D., describes erythromelalgia and treatment options.

I am also looking for that video. Please share results if you get one. Thanks

Hi Trish - Colleen posted the link to the video just above your post. I watched it this morning - pretty informative.

Hi John: Thanks for the heads-up. I found that link right after I wrote that post on wanting to see that video.
Again, thanks.
Trish

Yup, that's it.