I was diagnosed in May with IGA Vasculitis. Female, 68 yo. Presented with red dots all over legs, moved up to torso and arms. Tests showed blood and protein in urine. Had skin and kidney biopsy. Showed IGA vasculitis and IGA Nephropathy NOT related. Which was a good thing and they were surprised by the biopsy bc they felt the Vasculitis caused the kidney issue. Nephrologist put me on Losartin 25 mg to control kidney issue. Protein went from 970 down to 280 in short period of time. She said it will continue to go down as Losartin takes effect.
My Rheumatologist had me on 20 mg Prednisone for Vasculitis. As I was weaning off of it, spots came back. Upped me to 60mg. Weaning off, had 3 days left of pills, spots came back. While weaning off I was put on 50mg Aziothiaprine. Was upped to 10 mg Prednisone and trying to wean off again. I have been reading Naltrexone has been used for vasculitis and been able to get it in remission. My Rheumatologist won’t prescribe it. I’m looking for a second opinion on its use.
I’m hoping everyone with this condition gets a kidney biopsy. The course of treatment for me would have been different if they were related.