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High Risk Mutation (ie. BRCA, ATM, RAD51D)

Breast Cancer | Last Active: Aug 23, 2023 | Replies (26)

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@janeullmann1

I have the BRCA1 mutation. I found out at age 66. I have the salpingo-oopherectomy w/hysterectomy in May. My recovery went well. Now I'm deciding whether to have the bilateral mastectomy. I've found out that, at my age (just turned 67 yesterday), my risk of getting breast cancer is 28-32%. I was operating under the assumption that my risk was 60-70%, but that is lifetime risk, and according the the chart used at Mayo Clinic and Stanford, the risk goes down as you age. Unfortunately, the charts don't take into account family history of first-degree relatives who have gotten cancer (I have a few, but either they were not tested for mutation or they were tested but were negative.) I'm really in a quandry about having the surgery. The genetics counselor I met with initially was also unable to establish a clear increased risk based on the information I gave her about my family history. Any input or guidance is appreciated!

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Replies to "I have the BRCA1 mutation. I found out at age 66. I have the salpingo-oopherectomy w/hysterectomy..."

Hi Jane,
I have BRCA2 mutation and got breast cancer at age 66. I’ve since had a bilateral mastectomy. I found a lot of helpful information at force.org. Facing our risk of Cancer Empowered. Maybe you could find more information there to help with your decision. My daughter also has the BRCA2 gene and decided to have the BSO and a prophylactic bilateral mastectomy with immediate implants.
Whatever your decision, whether to continue monitoring or have the surgery, I hope you find peace of mind.