Hello, I am new to the site and I was diagnosed with a NET in the thymus last summer. I had surgery in February to remove the cancer. Once they cut me open they discovered the cancer had spread to my heart. I initially started with chemo and radiation last summer as they were reluctant to do the surgery at the time due to the location and size of the mass. The mass initially shrunk after my first few initial chemo treatments. The surgery was a huge surgery and took a toll on my body. The cancer ate at my right lung, diagram, and heart. I’ll spare the details of what was done but can share if anyone is curious. They were able to remove the cancer from my body. I’m still trying to recover physically and mentally.

I had two CT scans in the last 3 months and they will monitor me with scans every 3 months for the foreseeable future to check whether or not cancer has come back.

I am grateful for the surgery but I am concerned they may have to do surgery again because my most recent scan showed one of the stents they put in me is blocked and one of the sternum wires inside my chest has fallen off which has been causing me some pain where it’s seated inside me. I will be meeting with the thoracic surgeons in a couple weeks to find out what they will do.

I am grateful for this site as I have scrolled through and learned a lot about NET’s and different things already.

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