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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Oct 4 1:13am | Replies (240)

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@benchi300

i cant find your old post but did you mention the round of prednisone stopped it for good? did you take it for a while and at high dose? I will discuss that option with my neurologist if you found relief, she had already mention something about that med. thanks

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Replies to "i cant find your old post but did you mention the round of prednisone stopped it..."

I found the old post and will paste it here. I hope your doctor feels it’s worth a try. It was such a desperate time and I hate that anyone suffers from these awful headaches. :

lisalucier – I started the Prednisone taper on 11 December. 42 tabs 10mg. I'll complete dosing on 22 December. Prior to starting the Prednisone I think the other meds had thrown off the timing of the headaches, so rather than waking me at a specific time, they were more random and not quite as severe, but was feeling generally achy along with a constant feeling of shakiness. I have tolerated Prednisone pretty well in the past, when taken for extreme cases of poison ivy and a lengthy battle with hives following a surgery. This round, after day 2, the headaches completely ceased and I've felt much better with the exception of the shakiness, a little fluid retention and elevated blood pressure. I expect the fluid retention and blood pressure will return to normal after I complete the dosage and, if true to form, I expect a week or 2 of feeling generally lousy while my body takes back over to produce cortisol.

After completing the dosage, I remember waking with a headache once more, a few weeks later, but not as severe. They haven’t returned since. Mine were always left side of head and mind blowing severe. Caffeine helped with the pain but no other pain meds helped at all. I wish you success🙏