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Newly diagnosed with lung cancer

Lung Cancer | Last Active: Sep 27, 2023 | Replies (51)

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@diana5

Hello, my name is Diana, and I am 74 hrs old, and have never smoke. I was diagnosed with lung cancer two weeks ago. My pulmonologist have been doing CT scans on a yearly basis following up on various nodules (3) on my left lung discovered by accident 5 years ago. In the last CT scan it showed that the nodule he has been following measured 9.71 mm, and had changed shape (like a pear). He suggested to do a robotic bronchoscopy and biopsy of it and of some lymph nodes. The result came back as “carcinoid tumor”. He is recommending removal of it, as well as the lower left lobe of the lung via robotic surgery. I have met with a surgeon, and he also recommends the same. He said because of where the tumor is located, a partial removal will not work, or a wedge, since the tumor is in the center. He informed me that Carcinoid tumors do not respond to chemo, and when given radiation, they might stop growing for a while, only to start again down the road. They believe that because I am healthy (so I thought), surgery will be the best way for me. Looking for some feedback, what to expect. I’ve never had any major surgeries, and still trying to wrap my head around what’s ahead. Thanks! Blessings to all fighting cancer.

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Replies to "Hello, my name is Diana, and I am 74 hrs old, and have never smoke. I..."

Welcome, @diana5. There are different types of lung cancer. A carcinoid tumor is a type of neuroendocrine tumor that grows from neuroendocrine cells. Neuroendocrine cells are found in organs throughout the body. Carcinoid tumors often grow very slowly.

I recommend that in addition to taking part in the discussion in the lung cancer support group, that you may also wish to follow the:
- Neuroendocrine Tumors (NETs) support group https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/

I encourage you to introduce yourself in this discussion to meet other members with carcinoid tumor of the lung:
- Anyone had surgery to remove typical carcinoids of the lung? https://connect.mayoclinic.org/discussion/typical-carcinoids/

Welcome, diana5. I'm sorry for your recent diagnosis. It's quite a scare. Isn't it, even if it's been way back in your subconscious? It's different from regular, old-fashioned, and sometimes is referred to as a syndrome rather than a true cancer.

One thing that makes it different is that many people are cured of it by having it completely removed.

There is a group dedicated to just this.
https://connect.mayoclinic.org/discussion/carcinoid-tumor-diagnosis/
I'm sure others with carcinoids can help you.

What have you decided to do?