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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@taterjoy

I hope your neuro listened better than mind did, and was nicer. Having no treatment luck at Kaiser NoCal, I referred myself to the San Francisco Headache Clinic (2006-2008). The "famous" headache specialist there was able to diagnose my "rare" Hypnic headache type after 6 expensive monthly visits, which I appreciated and appreciated learning Indomethacin alone worked (while the variety of narcotics alone and in combo with many other meds he had prescribed, prior, had done nothing). I severed ties when he kept prescribing oral treatments for my acute hormonal migraines, though I told him that due to acute vomitting and diarreah, the oral meds all got propelled from my body and thus, did not help at all.

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Replies to "I hope your neuro listened better than mind did, and was nicer. Having no treatment luck..."

I bet you saw Dr. Goldstein. I went to him for over 30 years. He is quite an unusual man. He fired me about 5 years ago because I was his only private patient left in his practice. He only does testing for big pharma now and I didn't want to be part of his test groups. I will say he diagnosed my husband's Cerebral Angioma when he had symptoms and I didn't know where else to bring him. He is since in the care of UCSF neuro dept.