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@taterjoy

I saw your comments on my earlier post in 2016 about Hypnic headaches. While Emgality and Avovy had both helped prevent migraine headaches from daily to "only 4-5 per month," neither has had any impact on preventing my noctural "hypnic" type headache. My nighly nocturnal headache were finally diagnosed in 2007 as a "hypnic" by a Headache specialist, in CA, I saught help at Mayo clinic in 2020, and learned it no longer fits the category definition of HYPNIC. But it is an Inflammary style headache that mimics a cluster headache, occuring 4 times nightly at REM cycle, if I don't take Indomethacin plus caffiene (and now also Melotonin). I also must take RX pantoprozole to prevent GI bleeding from long-term use of Indomethacin. My life is FAR BETTER now that prior to finding Indomethacin (started with 75mg ER , and took that for many years) and Caffiene. I drink 1/2 cup DARK ROAST coffees about 30-45 minutes prior to bedtime. I used Starbucks Dark Roast Italian nightly for years, but have switched to Great Value (Walmart) Dark Roast Italian or Columbian (both also work and taste great) to save $$$. My Indomethacin dose is now lower than it was initially. I now split a 50mg dose (25mgs 1 hour prior to bedtime, and another 25mg AT bedtime along with 20-30mgs melatonin). I hope you can find something that works with few if any side effects.

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Replies to "I saw your comments on my earlier post in 2016 about Hypnic headaches. While Emgality and..."

Hello did you find that the indomethacin kept its efficiency for a long time compare to other meds that would loose its efficiency over weeks or months? Its important to take the 'slow release' tablets? I will discuss it with my neuro. Do you also need to take the melatonin now? I've read various comments here and indomethacin seems to be the 'go to' for hypnic headaches after caffeine... For a while caffeine alone was doing the job for me but the past 4 years it has lot some effect and is not enough. The only thing with the indomethacin its a nsaid wich could be bad for the stomach etc.. May i ask how long youve been taking it ? Thank you