Connect
← Return to Peripheral Neuropathy - Result of PMR or Prednisone?
Discussion
Peripheral Neuropathy - Result of PMR or Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 2, 2023 | Replies (29)Comment receiving replies
Has anyone in remission noticed a lingering muscle weakness from PMR? After 18 months of taking Prednisone, I was happily able to taper off four months ago without experiencing pain, but still some stiffness in the mornings. However, I seem to have lost all strength in my arms, hands and pelvic girdle, which is where my pain used to be. Most of the time I am unable to rise from a sitting position without assistance. I have even installed a lift assist recliner, something I did not visualize having to do for at least another ten years! I've also experienced pins and needles in my hands which I have put down to inflammation in the carpel nerves. Not complaining because I'm so glad to be out of pain and off Prednisone, but just wondering if others have experienced the same.
Replies to "Has anyone in remission noticed a lingering muscle weakness from PMR? After 18 months of taking..."
Connect
I am going for a EMG to confirm Prednisone induced myopathy, biggest concern is getting up from sitting position and using stairs, ramps. I also cannot lift my legs when laying supine, and have muscle weakness in arms also. Fatigue arrives everyday around noon and all is done for the day once that arrives.
I am one month prednisone free after 4 long years including a 6 mth period of accidental overdose of 35mg daily.
I tried to begin a rehabilitation program to battle the lose of conditioning, muscle and pain post prednisone and it was the physiotherapist that bought up the myopathy.
I also have peripheral neuropathy however mine was a result of Leflunomide, i was stopped once the neuropathy was identified.
PMR has been a nightmare seems it is considered benign by a lot of the medical world as it is supposedly self limiting but as far as i am concerned it packs a mighty punch.