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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Jan 7 3:52pm | Replies (207)

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Profile picture for fowlair  Mary F @fowlair

My husband has Stage 4 lung cancer. Initially diagnosed as Stage 1 in 2013. Had a wedge resection, no spreading to other areas. After that a few very small nodules in lung remained. Follow up scans every 3 months. Stable until May 2020. Growth returned in femur, lungs, liver and brain. Started on chemo, and radiation to brain. Growth again stopped and all except lungs showed no cancer. Chemo halted in November 2021 due to affecting production of red blood cells. November 2022, cancer returned aggressive growth. Cannot go back on chemo, Mayo dr recommended hospice.
He went from 185 lbs to 131 during this time. Hospice put him on a steroid and he gained 30 lbs in 2 months. He’s had more energy and his appetite has increased. But his short term memory is poor, he is unsteady on his feet, and now has urinary incontinence. He has been pain-free this whole time, but he told me last night that he’s having intermittent pain under his armpit. So I suspect it is now in the bones.
We’ve been living with this for 10 years, and with Stage 4 for 3 years. I truly believe the doctors at Mayo have extended his life longer than normally expected. They are wonderful, caring people. I love Dr Manochakian!

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Replies to "My husband has Stage 4 lung cancer. Initially diagnosed as Stage 1 in 2013. Had a..."

Oh Mary (@fowlair), what a story you have to tell, thanks for sharing. You and your husband have been through so much. I'm glad you've had this additional time together. You've been fortunate to have each other, and I wish you both the very best and peace during the coming months.

@fowlair
Hi
I am new here. My husband who is 65 years old had a lower back ache and nothing helped it get better. He finally went in to get an MRI and they found a tumor in his right lung and it had spread to his lower back bones.
This was so - out of the blue - but, Thank God we went in to get his back checked.
We are waiting on some chemotherapy for him, it should be soon.

In the meantime, my husband has back pain and pain pills but, he still seems in so much pain. I HATE seeing him in pain, it is so awful. I am really trying to be strong and positive when I am with him , it is difficult.

Does anyone have any suggestions as to how better I can help his back pain possibly?
I want to make him as comfortable as possible while he goes through this awful disease.

Thank you