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To start or not to start the antibiotics?
MAC & Bronchiectasis | Last Active: Sep 10, 2023 | Replies (59)Comment receiving replies
Irene, I am in a terrible spot. Maybe you can give me your input. I wrote to Dr Swenson Friday (pulmonary). I’m not sure if it’s the meds. I am so sick Irene. My ears started ringing, hurt inside. My blood pressure is off the charts….my fibromyalgia is off the charts, my hearts pounding, vaginal burning (waiting for insurance co to give me exception for my hormones); tongue hurting burning for ten months now, headache, I feel so damned sick. I’m scared and I feel like I’m slipping through the cracks Irene.
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I am soooo sorry Bonnie. Please know this is only my opinion. It seems to me the meds don’t agree with you . Here’s what I would do, and I’m not you. See if because the meds are making you sick you can take inhaled Arikayce. That’s what I did, and it killed the MAC. Arikayce is for people who can’t tolerate the oral pills. It is expensive, but there are many payment options. You have given the meds a try. Good girl for that. Ask about Arikayce. I used that and had no side effects - only one- it finally killed the MAC . Irene