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Dialysis - Stories and Questions

Kidney & Bladder | Last Active: Nov 7 5:37pm | Replies (44)

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@gingerw

Well, replying to my own post now. LOL

I did some in-depth research about the collagen based kidney disease I have, called Type III Collagenofibrotic Glomerulopathy. It is ultra-rare, and no research monies being used since there are so few patients with it. Type III Collagen, it turns out, is a pretty interesting creature, and can have the effect of producing fibrin within the peritoneal cavity. Voila! the answer to my being a "fibrin factory".

When I presented this evidence to my dialysis clinic, we all agreed that adding a second session every other day hours after the first session ["it's just one bag, dwell for an hour", but still it would add almost another 3 hours start to finish!] would not be fruitful. We did modify my heparin to 2cc per day, injected into the first bag. Oh, and I did indeed do that second session for 2 weeks, what a chore!

Glad I took the "bull by the horns" and advocated for myself, once again.
Ginger

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Hello I was wondering how to get in contact with with questions about gfr numbers on kidneys.