Hi
I guess I’m looking for answers and support for me (caregiver) and my husband who has a 6mm pineal cyst. He has a lot of medical issues and has been dealing with this for over a year. He had last year a TAVR (Transcatheter Aortic Valve Replacement) procedure. His symptoms were more noticeable after that procedure. He could be texting and automatically drop his iPhone and be asleep or unconscious for a couple of minutes and not complete his thought process. That is just one of many episodes. He is on Keppra medication. We know that this cyst deals with your sleep cycle. His sleep pattern is so off the charts to me. He dozes after breakfast, mid-morning then lunch and after lunch doze and doze again later midafternoon. Then in the evening he dozes off and tries to stay awake till bedtime. Most of the time goes to bed very early and then sleeps a couple of hours then up and this cycle starts all over again.
He also has seizures – dizziness, can’t move numb lips, tingling etc. They don’t last long but he has about 4 -5 episodes a month.
Do any of you have these same issues, and if so, what do you do about it? Any help is greatly appreciated. I’m not sure what questions to ask and who to see. The cyst was diagnosed in March 2023, medication started in May 2023.
This is not the man I married over 40 years ago. We were very outdoorsy people – camping, hiking, etc. We live in California, in the very north. I kept googling and Mayo Clinic would come up and I’m very grateful for their website as it has been very helpful. Looking for answers.