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Managing MAC without antibiotics
MAC & Bronchiectasis | Last Active: Feb 19 4:09am | Replies (115)Comment receiving replies
Hi Mary Jane - I had never heard of LDN until this past Spring, when the pain rehab clinic started my husband taking it. He has RA, diabetes and chronic kidney disease so most RA meds are "off the table" for him. He just suffered (and not silently!)
LDN has been very helpful to him - with his pain doc and our PharmD (part of the pain rehab group) - he has titrated to the best dose for him. It has been life-changing for him - he is back in our lives instead of watching from the sidelines,
Let me mention, to get the best relief he takes a divided dose - one in AM, one near supper. This is not common, but it helps more than a higher dose once a day. You may want to keep it in mind as you work to get the most effective control.
Sue
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Thank you Sue for the information on divided usage of LDN. I am up to the preferred dose of 4.5 mg. but I know some people require more and some less. Does your husband still have RA flares and does he feel they are milder because of LDN? Im not sure what the expectations are but I hope the LDN combined with my MAC treatment will relieve the debilitating fatigue. Glad your husband is doing better and regained some of his zest for life.