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@mdr3

Yes. Misdiagnosed 3 times (including at the first surgery). It was not until the complete pathology came in after the first surgery that they knew it was a cancerous lesion. I was angry as all get out when they said I had to "return to the OR" for a radical ressection and bilateral inguinal node dissection. This is a rare, and not often seen cancer in most settings. I demanded a biopsy as well, because of the pain. Mine was HPV related (at age 73 and widowed for 27 years). In the end, this worked to my advantage, as HPV related cancers tend not to spread as quickly (but had to get a second opinion at a cancer center to find that out). The good news is pathology 2nd time around was totally clean and no lymph nodes cancerous. I would say, get as much information as you can prior to surgery -- from a cancer center if possible.

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Replies to "Yes. Misdiagnosed 3 times (including at the first surgery). It was not until the complete pathology..."

Mine is most likely from Lichen Sclerosis, which I was diagnosed with. Cancer is a known risk from Lichen Sclerosis. I am disappointed that they didn’t consider that at the beginning instead of insisting that it was Herpes.