← Return to Anyone out there with Thymoma/Thymic Carcinoma

Discussion

Anyone out there with Thymoma/Thymic Carcinoma

Cancer | Last Active: Sep 3, 2023 | Replies (136)

Comment receiving replies
@vickilk

Hello,
I've found a lot of comfort and learned a great deal from the stories here. I was wondering if you could suggest any oncologists in Southern California who know about thymoma. I'm 59 years old and I recently had two surgeries to deal with a thymoma. The first surgery was on June 15, 2023, because they thought it was a teratoma. But after more tests at the Mayo Clinic, they found out it's a specific kind called thymoma type B (60%) with Type B3 parts. Then, on July 24, I had another surgery where they removed the thymoma completely. This surgery took out the left phrenic nerve, a part of my lung, and the pericardium.

Since the tumor was taken out in two different surgeries, I'm told there might be a bit more risk, like the possibility of spreading. I haven't seen an oncologist yet. Because thymoma is rare, I'm asking if anyone knows of good doctors in Southern California who have experience with it. Your help means a lot to me.

Jump to this post


Replies to "Hello, I've found a lot of comfort and learned a great deal from the stories here...."

Hi @vickilk, I don't have a specialist recommendation in Southern Calaifornia, but I wonder if you've considered working with your Mayo Clinic cancer team in collaboration with a local cancer specialist?

I'm tagging fellow thymoma cancer members like @missbev @andylevine @lmno @anotherfinemass who may have additional thoughts.

You might also be interested in these related discussions if you hadn't seen them already:
- Thymic Tumors
https://connect.mayoclinic.org/discussion/thymic-tumors/
- Thymoma Cancer B3 stage 4: starting immunotherapy
https://connect.mayoclinic.org/discussion/thymoma-b3/