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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 hours ago | Replies (6025)
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@llevy0081

To Weezie4u2, Yes, I have been diagnosed with neuropathy by my general practitioner, I had the tests done at the hospital. He didn't recommend a neurologist, and I haven't seen one. Thanks.
To John, l really don't know whether to see neurologist or not. It sounds as if he is just going to tell me there is nothing they can do. The hospital tests showed that I had a very bad case of it. I've tried Gabapen, it helped a little, but made me have cramps really bad. It seems pretty hopeless. Causing a little depression, which I've never experienced before. I have a very unsteady walk, even with a cane, and the pain is very disruptive. Hoping someone can come up with something that at least relieves it. Thanks

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Replies to "To Weezie4u2, Yes, I have been diagnosed with neuropathy by my general practitioner, I had the..."
John, Volunteer Mentor | @johnbishop | Aug 20, 2023

@llevy0081, Have you looked at the Foundation for Peripheral Neuropathy's site to see if there might be some form of treatment that may provide some relief for you?
--- https://www.foundationforpn.org/living-well/

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Ray Kemble | @ray666 | Aug 20, 2023

Hi, llevy0081 (@llevy0081),

Everyone's situation is different, of course, as to what might be best to do according to an individual's situation. I can only speak for myself. I was diagnosed with idiopathic axonal sensory/motor peripheral neuropathy a year ago this month (August 2022). That's after having messed around with worsening balance for almost ten years, and never once in all those years seeing a neurologist. I saw almost every other kind of specialist, however. Today, I wish I had seen a neurologist sooner. While it's true he's not been able to "cure" me, he has given me the name of what I have, and that has allowed me to learn about my condition, distinguish its dozens of varieties, how to watch for the signposts of progression (if and when they appear) – as well as to become involved with this group (a great source of information)! If nothing else, education and community involvement have given me peace of mind.

For me, achieving peace of mind began when – after almost ten years of guesswork – I finally saw my neurologist. That's why I would encourage others like yourself not to wait but to do the same

Cheers!
Ray (@ray666)

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