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Managing MAC without antibiotics

MAC & Bronchiectasis | Last Active: Feb 19 4:09am | Replies (115)
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@maryjanechilds

I have RA as well and I had to get off my RA meds (except for hydroxychloroquine) in order to boost my immune system to fight the MAC infection. My primary care doctor prescribed Low Dose Naltrexone as a possible aid to fighting RA flares during my MAC treatment. Still in the early stages but I think it is helping. I was on Humira which suppressed my immune system and unfortunately was one of the reasons I became susceptible to MAC. There’s lots of info online regarding LDN.

Mary Jane

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Sue, Volunteer Mentor | @sueinmn | Aug 20, 2023

Hi Mary Jane - I had never heard of LDN until this past Spring, when the pain rehab clinic started my husband taking it. He has RA, diabetes and chronic kidney disease so most RA meds are "off the table" for him. He just suffered (and not silently!)

LDN has been very helpful to him - with his pain doc and our PharmD (part of the pain rehab group) - he has titrated to the best dose for him. It has been life-changing for him - he is back in our lives instead of watching from the sidelines,

Let me mention, to get the best relief he takes a divided dose - one in AM, one near supper. This is not common, but it helps more than a higher dose once a day. You may want to keep it in mind as you work to get the most effective control.
Sue

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