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@joanma

I’m no doctor or scientist, so here’s my amateur understanding. I have read everything I can find on Long Covid, and many see it as a disease of the mitochondria at the cell level — the virus has damaged them so our cells can’t produce the energy levels we need. That’s why the exhaustion and the overall incapacitation, and why pacing is so critical — push beyond the energy our cells have and there is a toxic build-up at the cellular level which makes us feel worse (not better) and energy levels get/stay low — and pushing too much brought me days of needing to recover to even get back to where I was before the energy crash with accompanying aches, pains, and limits as if I had been hit by a truck. When I worked from that premise, I accepted I could not go beyond my current energy limits without a crash and burn. The more I paced, the more over time I could do and the fewer/milder the crashes. I fuel by lying down and mini-naps, not coffee. It’s been a long recovery but the trend has been uphill and healing lasting. Hope this helps. Long Covid has been a bear and a shock beyond anything I expected life to bring my way. But I have hopes to heal completely.

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Replies to "I’m no doctor or scientist, so here’s my amateur understanding. I have read everything I can..."

Hi Johanna,
I can relate to much of what you've said - especially about pacing, crashing and massive reading, especially of medical abstracts, of everything I can get my hands on about Long Covid. I am leaning toward another major medical theory about Long Covid causation - microclots. Medical evidence in the US, UK, Germany, South Africa and elsewhere has led to the conclusion the microclots produced during viral illnesses and normally dispensed with during the recovery process, linger in Long Covid patients. The theory is that these microclots prevent necessary oxygen from being adequately dispersed organs within the body, resulting in the shortness of breath and brain fog common to Long Covid patients. There's even an experimental treatment in Germany and UK where and apheresis process to remove blood, "cleanse" it and return it to the body. Results are mixed. Based on this medical research and experimental treatments, I am trying donating blood to see if it helps my symptoms. I had never donated blood before and will be alternating between donating whole blood and also plasma and "power red". The later two use process similar to the apheresis Long Covid treatment. Just started, but noticed some improvement and will be further chronicling any changes and healing with upcoming blood donations. Worst case - I'll be saving lives by donating blood.