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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 2 days ago | Replies (808)

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@debscan68

I was recently diagnosed with chondrosarcoma on my sacrum. I finally have an appt at Mayo on August 29th. I have lots of pain and really looking forward to working with the specialists there. I went through 5 different Dr's until I finally drove myself to the ER. They finally did a CT and found the mass. I knew for months that something was going on and finally someone listened. This could've been taken care of months ago. Instead I lived in severe pain for months. So happy my oncologist referred me to Mayo.

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Replies to "I was recently diagnosed with chondrosarcoma on my sacrum. I finally have an appt at Mayo..."

I hope you are relieved from your pain soon . My husband had a chondrosacroma removed from the base of his skull, twice at Jackson Memorial Hospital in Miami. Good luck and thank god they finally found it .

I have been diagnosed with an echondroma (July 2023)by the radiologist who read my images but my oncologist said she felt it was actually a condrosarcoma and referred me to Mayo in Phoenix in July 2023. I just completed radiation for Lobular breast cancer that traveled to my lymphe nodes in May 2023 and I wonder if that could have turned it into cancer. My lab work has been what would be expected having gone through a lumpectomy and than 4 weeks of radiation (to breast only; did not radiate lymph nodes ??) but last Monday I had my labs drawn and about 5-6 of the items they test for were abnormal leading my oncologist to think I am leaning towards multiplemyloma. Have you had any blood work that was concerning to you oncologist? I am sorry to hear you are going through this. Chronic pain definitely effects your quality of life. Have they been able to help you with the pain? I have some pain in my rt femur where the tumor was found but as of yet it has been mild. The tumor is pretty big. 10cm x 2.2cm. How are you doing today? what treatments have they offered you? I am just wondering if you have been pleased with your treatment thus far. I'll say a prayer for you today.