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Dialysis - Stories and Questions

Kidney & Bladder | Last Active: Nov 7 5:37pm | Replies (44)

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@gingerw

@lpw, here is the post you had in the Transplant List thread. I think it will be better answered here and get more exposure to members currently on or previously on dialysis, to get their input!

"My husband did dialysis for six weeks two years ago and now, his numbers indicate that he needs to have dialysis again. He is preparing to go on peritoneal dialysis and I plan to help him. I wonder how frequently peritonitis happens and what special precautions one should take to prevent this from happening?
What happens if you have to miss a night of treatment? Did you have any aftereffects from this dialysis like you did from the other? How long did it take for you to feel better? Thank you so much for any time you give to my queries."

When your husband had dialysis those years ago, what modality was it? Hemodialysis using a fistula or graft, or peritoneal using a catheter in the abdomen? Was it prior to a transplant and then discontinued after a successful procedure? Does he have a failed transplant that requires a possible second transplant?

Very cool to read you will be your husband's care partner. Make sure you attend all his training sessions, so you know exactly what he will be going through. I find that is critical. My husband attended some of my training sessions, but felt because he had done PD from 2011-2016 he didn't need to be trained. We found there were different techniques involved. His experience was he had used a cycler at night, where I do manual exchanges during the day. Your trainer will stress the aspect of keeping things clean to help eliminate contamination, including hands/exit site, equipment, supplies, area, etc.

Here is what Fresenius Kidney Care has to say about peritonitis and PD: https://www.freseniuskidneycare.com/treatment/peritoneal-dialysis/peritonitis#:~:text=Peritonitis%20most%20often%20starts%20when,common%20and%20can%20happen%20easily.

Missing a session on PD can have different effects for each patient. A lot depends on the prescription as set forth by your clinic. For me, my prescription is "light", and I skip a session maybe once a month. I know a lady who was told by her dr it was okay to skip 2 sessions a week.

As far as long before you feel better, it could be within a week of getting his blood cleaner with the dialysis. Remember, the PD is in addition to whatever function remains in his kidneys, not a replacement for the function. They are seeing that the higher eGFR is when dialysis is started, the better the outcome. I personally started at 14%, and have rebounded up to 16%.

Thank you for reading my lengthy post! Any further questions for me or any of us?
Ginger

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Replies to "@lpw, here is the post you had in the Transplant List thread. I think it will..."

Thank you Ginger! No transplant, but viral pneumonia that progressed rapidly into a kidney emergency. Before hospitalization, he maintained 30% kidney function. A port was surgically implanted in his shoulder area for hemodialysis in the hospital. The dialysis was continued in a Davita clinic three days a week for six weeks. His kidney function improved to 20% and stayed close to that until about three months ago. We have had one day of training and felt the Davita nurse was knowledgeable and a top notch teacher. Thank you again, Linda