Hello Everyone,
I contracted Covid 19 in January 2021, and I have not been healthy since. All of the things I read here, I have same systems. Headaches, my muscles ache, joints aches, my brain is scrambles I can't spell simple words. I struggle while speaking, I can't get the right words out of my brain to come out of my mouth. My memory is currently playing hide n seek, because I can't find it. I get like wobbly, like I need a V-8. My hands shake, coffee spilling out of my cup shaky. I drop things all the time. At times I have shortness of breath and use an inhaler, I had a Gran Mal seizure, I am tired all the time - so tired. I have a hard time focusing on pretty much anything. It awful. I've tried Eastern & Western methods, acupuncture, vitamins, iv's. I meditate almost everyday. I also have a stationary bike. I do the 8 or 10 minutes of beginner's type workouts or Pilates, still struggling to find my sweet spot. I keep my inhaler close. I have been trying to kick Long Covid out of my mind this is just going to go away. I can have a "Normal workout" and a "Normal day" , I want to make dinner for my family, make a bed, vacuum, drive.... My body tolerates very little, or at least compared to pre-covid. I have blacked out so many times, I have broken ribs, broken foot, broken ankle, gave myself whiplash from walking into a wall. I currently have a rotator cuff injury from falling on it so much. my blood pressure is fine. I was tested for POTS. They can find nothing wrong.
I am a positive person, and I am happy to read all of your stories!!! They inspire me. I am in California. I got up about 7am, it is now 10:51am, 2 cups of coffee, 1 Adderall and an 8 minutes arms YouTube video. I can barely keep my eye's open.
Thank you Mayo for providing these platforms for us to share and discuss what we are going through.
Whoesonfirst
I’m no doctor or scientist, so here’s my amateur understanding. I have read everything I can find on Long Covid, and many see it as a disease of the mitochondria at the cell level — the virus has damaged them so our cells can’t produce the energy levels we need. That’s why the exhaustion and the overall incapacitation, and why pacing is so critical — push beyond the energy our cells have and there is a toxic build-up at the cellular level which makes us feel worse (not better) and energy levels get/stay low — and pushing too much brought me days of needing to recover to even get back to where I was before the energy crash with accompanying aches, pains, and limits as if I had been hit by a truck. When I worked from that premise, I accepted I could not go beyond my current energy limits without a crash and burn. The more I paced, the more over time I could do and the fewer/milder the crashes. I fuel by lying down and mini-naps, not coffee. It’s been a long recovery but the trend has been uphill and healing lasting. Hope this helps. Long Covid has been a bear and a shock beyond anything I expected life to bring my way. But I have hopes to heal completely.