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@whoesonfirst

Hello Everyone,
I contracted Covid 19 in January 2021, and I have not been healthy since. All of the things I read here, I have same systems. Headaches, my muscles ache, joints aches, my brain is scrambles I can't spell simple words. I struggle while speaking, I can't get the right words out of my brain to come out of my mouth. My memory is currently playing hide n seek, because I can't find it. I get like wobbly, like I need a V-8. My hands shake, coffee spilling out of my cup shaky. I drop things all the time. At times I have shortness of breath and use an inhaler, I had a Gran Mal seizure, I am tired all the time - so tired. I have a hard time focusing on pretty much anything. It awful. I've tried Eastern & Western methods, acupuncture, vitamins, iv's. I meditate almost everyday. I also have a stationary bike. I do the 8 or 10 minutes of beginner's type workouts or Pilates, still struggling to find my sweet spot. I keep my inhaler close. I have been trying to kick Long Covid out of my mind this is just going to go away. I can have a "Normal workout" and a "Normal day" , I want to make dinner for my family, make a bed, vacuum, drive.... My body tolerates very little, or at least compared to pre-covid. I have blacked out so many times, I have broken ribs, broken foot, broken ankle, gave myself whiplash from walking into a wall. I currently have a rotator cuff injury from falling on it so much. my blood pressure is fine. I was tested for POTS. They can find nothing wrong.
I am a positive person, and I am happy to read all of your stories!!! They inspire me. I am in California. I got up about 7am, it is now 10:51am, 2 cups of coffee, 1 Adderall and an 8 minutes arms YouTube video. I can barely keep my eye's open.
Thank you Mayo for providing these platforms for us to share and discuss what we are going through.
Whoesonfirst

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Replies to "Hello Everyone, I contracted Covid 19 in January 2021, and I have not been healthy since...."

I’m no doctor or scientist, so here’s my amateur understanding. I have read everything I can find on Long Covid, and many see it as a disease of the mitochondria at the cell level — the virus has damaged them so our cells can’t produce the energy levels we need. That’s why the exhaustion and the overall incapacitation, and why pacing is so critical — push beyond the energy our cells have and there is a toxic build-up at the cellular level which makes us feel worse (not better) and energy levels get/stay low — and pushing too much brought me days of needing to recover to even get back to where I was before the energy crash with accompanying aches, pains, and limits as if I had been hit by a truck. When I worked from that premise, I accepted I could not go beyond my current energy limits without a crash and burn. The more I paced, the more over time I could do and the fewer/milder the crashes. I fuel by lying down and mini-naps, not coffee. It’s been a long recovery but the trend has been uphill and healing lasting. Hope this helps. Long Covid has been a bear and a shock beyond anything I expected life to bring my way. But I have hopes to heal completely.