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DiscussionAnyone out there with Autoimmune inner ear disease (AIED)?
Autoimmune Diseases | Last Active: Oct 31 6:20am | Replies (228)Comment receiving replies
Replies to "I am newly diagnosed with AIED and Sjogren's Syndrome. I finally got a diagnosis for the..."
I'm just starting this journey. Dx of AIED. Tinnitus bad in left ear, plugged, full etc. Food seems to play a part in the severeness. Anyone have a diet that helps?
Hi Cindy - I totally understand your predicament with all those other symptoms going on adding more meds to it just makes your symptoms worse I know with the methotrexate sore so I have to take Folick acid other than that the 77 pretty minor prednisone like you right now I’m still in 10 mg unfortunately it’s such a rare situation. They were in the doctors really don’t know what to do. It’s just kind of a game of trying different things which is unfortunate for both of us. I know the hearing loss is huge. Specially, with what you do. I’m sorry you’re going through this.