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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 8 hours ago | Replies (854)

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@lls8000

@mickeyambrose49, I’m so sorry that you’ve had such a hard time with the doctors. Sometimes a change to a new oncologist is a good thing. The new doc brings a new perspective, but communication is vital in any relationship. When you talk with someone from the office, try asking, ‘what should I do if I don’t hear from you by X date/time’. Try to agree on expectations and backup plans. Sometimes getting to know the doctor’s nurse can be helpful in getting what you need.
It’s hard that it’s now the weekend, and you aren’t able to follow up with them on sending the scans and reports to Mayo. Call them first thing on Monday and ask what steps are involved. And ask if you are able to help speed the process along in any way? Ask when Mayo can expect to have the info, so you can follow up as needed. I agree that it shouldn’t be this difficult, but the reality is that managing complicated health systems with overworked staffs isn’t easy.
Knowing what you saw on the portal without additional details is difficult, and it’s normal for our minds to run wild. Try to take a deep breath and try to do things that have helped you get through difficult times in the past; get out into nature, watch a good movie to take your mind off things even for a little bit. Do you have a close friend or relative that you are comfortable talking to?

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Replies to "@mickeyambrose49, I’m so sorry that you’ve had such a hard time with the doctors. Sometimes a..."

Thank you for your kind words. I have talked with my brother this morning and his wife and my husband too although he is going through radiation treatments rt now for prostate cancer. I try not to put too much on him. He’s had a rough journey but he is supportive. We are going to go to a movie and a few other things this weekend. I need a break from thinking about it . I work long hours so I really need city of hope to get those records to Mayo for me. I will call and message them Monday morning before I start working tho. Thanks again for your kind words. It means a lot. Do you know if they have a support group for Chondrosarcomas?