← Return to Diagnosed with sarcoma? Let's share
DiscussionDiagnosed with sarcoma? Let's share
Sarcoma | Last Active: Nov 8 5:59pm | Replies (840)Comment receiving replies
Replies to "It’s been a long week. Pea sized mass (ILC) and 3 lymph nodes (1 cancer) removed..."
@mickeyambrose49, I’m so sorry that you’ve had such a hard time with the doctors. Sometimes a change to a new oncologist is a good thing. The new doc brings a new perspective, but communication is vital in any relationship. When you talk with someone from the office, try asking, ‘what should I do if I don’t hear from you by X date/time’. Try to agree on expectations and backup plans. Sometimes getting to know the doctor’s nurse can be helpful in getting what you need.
It’s hard that it’s now the weekend, and you aren’t able to follow up with them on sending the scans and reports to Mayo. Call them first thing on Monday and ask what steps are involved. And ask if you are able to help speed the process along in any way? Ask when Mayo can expect to have the info, so you can follow up as needed. I agree that it shouldn’t be this difficult, but the reality is that managing complicated health systems with overworked staffs isn’t easy.
Knowing what you saw on the portal without additional details is difficult, and it’s normal for our minds to run wild. Try to take a deep breath and try to do things that have helped you get through difficult times in the past; get out into nature, watch a good movie to take your mind off things even for a little bit. Do you have a close friend or relative that you are comfortable talking to?