← Return to ILC w/1 lymph node cancerous. Standard not to radiate lymph area?
DiscussionILC w/1 lymph node cancerous. Standard not to radiate lymph area?
Breast Cancer | Last Active: Aug 27, 2023 | Replies (23)Comment receiving replies
Replies to "Your post is encouraging. Thank you! I had a pea sized mass removed along with 3..."
I am just popping in here to say I am sorry to hear about your story and how your situation has been handled. I also have ILC and share your worries but seems like you've been given very little grace and respect on your journey. Please hang in there and know we are all sending you love and positive thoughts to keep head up, keep plugging away for answers and be persistent. Sadly we have to sometimes be a bit edgy to get progress and that doesn't help the situation which can be scary and unknown, and it beats down your mind while your body already taking a beating. Hang in there and sending you 💓!!
I would be on their case and call again and demand that they send them that day as they are holding up care for you and getting an appointment with Nayo and going forward.
Say that this is important for your care and ask who the contact person is that will be doing this.
Push, push push....
Hope that this is already solved for you.
So sorry that you have gone though all this.
Keep us posted.
Mayo should be able to run their own tests . That’s what they do at MD Anderson and I think Mayo is just as big and does not need to rely on the tests of some third rate hospital . So sorry you have gone through this mishandling of your journey .
@mickeyambrose49 I am wondering why, at 66, they put you on tamoxifen. Have you now tried aromatase inhibitors? I was able to tolerate brand name letrozole and later found out that I could tolerate letrozole from one manufacturer. Lobular can be harder to image, according to my doc, so glad you got it diagnosed.
More importantly, it is good that you had that bone scan so in the end being a squeaky wheel helped you! I also looked those terms up and the Mayo site says that enchondromas can sometimes transform into chondrosarcoma.
It seems that this new kind of tumor is not related to your breast cancer. Is that right? The Mayo site says that sometimes they are slow-growing and hoping you caught it early and surgery takes care of it. So sorry you are dealing with this!
I really hope you hear from someone Monday and don't have to wait for info and treatment.