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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6026)
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@brub0117

Hi, I just found this group. I have been dealing with foot numbness for many years after 3 lumbar back surgeries. I have no pain or tingling. It just feels like I am wearing socks all the time. I still have some feeling in my feet. I have developed diabetes that I am under a doctors care for and started taking Ozempic 6 months ago. My numbers are improving so that's good news. I am trying to get an appointment with a neurologist at the suggestion of my PCP. My concerns are that the numbness may affect my walking stability and my driving. I'm curious what treatments, if any, may be available. I do not want to take any meds if at all possible. I'm a senior citizen and on enough meds already. I'm trying to gather as much information as possible before I see the neurologist so any info you all can provide will be appreciated.

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Replies to "Hi, I just found this group. I have been dealing with foot numbness for many years..."
John, Volunteer Mentor | @johnbishop | Aug 18, 2023

Hi @brub0117, Welcome to Connect. You are not alone with the numbness. I've had it for more than 20 years but didn't get a diagnosis because all my different primary care docs over the years said even if have neuropathy numbness there are not topicals or treatments that help. That was what brought me to Connect back in 2016 when searching for something that might help. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

Can't say that I blame you for not wanting to take more meds unless it's absolutely necessary. There is another discussion on the numbness only symptoms that you might find helpful:
--- Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/discussion/neuropathy-numbness-only-no-pain/

You might also want to read through the discussion started by @ray666 which is about preparing for a follow up exam with a neurologist:
--- Preparing for a follow-up exam …: https://connect.mayoclinic.org/discussion/preparing-for-a-follow-up-exam/

Do you normally prepare a list of questions for upcoming appointments?

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Ray Kemble | @ray666 | Aug 18, 2023

Hello, brub0117 (@brub0117)

Welcome!

I found Mayo Connect about two years ago when I was at a loss as to why my balance had become so unreliable. For many months I participated in some of Connect's other forums until only last August (2022) I received a diagnosis of idiopathic axon sensory/motor peripheral neuropathy. Like you, I, too, have no pain or tingling. Unlike you, though, I do not have diabetes. So far, in this past year, I've not noticed much in the way of progression. I consider myself very fortunate in that regard.

I have been trying to learn as much as I can about my neuropathy. There are several informative sites online. One that has provided me with plenty of credible information is the Foundation for Peripheral Neuropathy, both the Foundation's main or home site and its separate YouTube site. You'll find a library of video recordings of the Foundation's many webinars on the YouTube site. And I'm sure you'll receive additional recommendations for good sites from some of Contact's great mentors in the coming days.

My No. 1 reason for replying to your post was to say Welcome! Pull up a comfy chair, brub0117, and make yourself at home!

Cheers!
Ray (@ray666)

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