Here is how I feel. I will never remain passive or lukewarm about this topic (breast cancer) because since my biopsy came back as breast cancer on July 25 my eyes have been opened wide to the disgraceful and unacceptable healthcare system, specifically in my case regarding breast cancer.
I will continue VENTING until things change.
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America's health care system is disgraceful. Mammograms and ultrasounds missing far too many cancerous tumors (up to 30% of cancers are missed on mammogram).
MRI'S that can and DO catch cancerous tumors (as in my case) that far too many mammograms miss are NOT used in catching these missed cancerous tumors, insurance companies not allowing other imaging machines as a standard up front line of defense.
LONG waits for far too many of us for biopsies. (I waited 1.5 months for a biopsy and waiting additional one month for surgery after waiting two additional weeks to see a breast surgeon) Then LONG WAITS again for many of us to see a surgeon and get life saving surgery and therapies in a expedited manner.
Highway robbery costs to get life saving drugs etc that only the wealthy can afford.
Disgraceful. Unacceptable. More women should be outraged over all this.
Things will never change or improve if we remain accepting of what is unacceptable.
My high definition 3D mammogram and ultrasound totally MISSED my cancerous breast tumor in February and only through MY PERSISTENT attitude did I finally get a MRI on June 2nd that showed this tumor in EXACT location my breast has been aching for several months.
Ultrasound earlier had called this distinctly CANCEROUS TUMOR just a BENIGN CYST.
AND WE WONDER WHY SO MANY WOMEN ONCE THEY GET ON THE SURGERY TABLE AFTER MONTHS OF WAITING AND WAITING ETC ARE FOUND TO HAVE MESTATISIZED BREAST CANCER AND WHY MANY WOMEN DIE BECAUSE OF TOO MANY MAMMOGRAMS MISSING these cancerous tumors or giving false negative results AND way too long in waiting to get to surgery for far too many of us to cut this cancerous out of our body.
Every breast cancer patient should have a pet scan to see, before surgery, if the cancer has spread YET MANY LIKE ME have NOT gotten a pet scan. Surgeons will admit they do NOT know fully the true diagnosis or aggressiveness of your cancer until AFTER the lumpectomy or mastectomy SO why a pet scan is not done at the earliest timeframe is beyond me.
I'm still waiting waiting waiting for my surgery to REMOVE this cancer (August 29 is the surgery) and I still have had no petscan even though my entire body feels like total crap.
Things will never change and the status quo will continue unless we women will no longer accept the UNACCEPTABLE.
Joanne Mulvaney
I have sent this long message or email now to every single news media that I can find in the state of Florida from TV to newspapers to radio to breast cancer groups because I am no longer going to except what is totally unacceptable.
I commend you for this. I’m completely flabbergasted that you haven’t had a PET/CT. That was my first test ordered after my biopsy. I love my oncologist team. First of all, the constant MENTAL stress if I didn’t have a PET I would be in a much darker place. It is DAMAGING to your brain and consuming your thoughts. I’m 43 with a 3 1/2 year old toddler and the thought or possibility of leaving her young is is literally the scariest thing ever. Very healthy overall but I’m going to push every test at every angle for the quickest turnaround so we have a quicker plan. Time is of the essence, this stuff grows. Grows slower for some, but for me it does not. That’s why even though I hate to look at it, I read EVERYTHING after every test so I know what you expect and if they think I’m borderline, let’s move up the aggressive scale. I’m here to live and want every chance at the lowest possible recurrence rate so I’m going as aggressive as they’ll let me. I think I’m getting another MRI before surgery (after my chemo) to assess the situation to see how it has responded and what we need to add or change so we can get a PCR. They know this is my very highly sought after goal. I’m only thinking that your nodes were clear on MRI so they didn’t move forward with the PET possibly? But honestly still… it doesn’t matter. They need to stop putting a price on our heads. Or give us the option to pay. I don’t care, I want everyone to have the option. And it’s been this long total?! Ohh wow… I understand your anger! I would be spinning!