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Stage IV

Pancreatic Cancer | Last Active: Aug 18, 2023 | Replies (29)

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@nvan22

Mayo Rochester had me do 8 rounds of fulfirinox then 3 weeks of radiation, the higher intensity vs the lower 5 weeks. it was my choice. I chose to do the three weeks. 6 weeks later I had the whipple. The tumor was dead when he went in for the whipple. It was all done laparoscopically. It was amazing. 10 months later I am doing well. Back doing most all the things I normally did like ride my horse and walk or run 1-2 miles a day. My issues with diarrhea have subsided I think I have it under control if I eat small meals every 2-3 hours and take an Imodium AD and my creon as prescribed. Hope this all helps. I don’t know why some DrS do the radiation or chemo after the Whipple. Mine was all before surgery.
Best of luck to you!

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Replies to "Mayo Rochester had me do 8 rounds of fulfirinox then 3 weeks of radiation, the higher..."

nvan,

Congratulations!

How do you monitor for recurrence or mets to other areas? CA 19-9 testing, and how often?

Repeat CT and PET scans?

Was any maintenance chemo discussed?