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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@briansr

Yes, I believe I am.If I move my toes it feels like there is mud with rocks mixed in. It's moving up my feet and ankles, numbness, feet feel cold but there're nice and warm. Sometimes they are warm but I always have a burning feeling in both feet. I've tested myself with a sharp item, (shouldn't do this), and I have no feeling from the toes up to the beginning of my ankles, both feet. When I walk it feels like I'm walking on rocks, with and without shoes. A lot of leg pain and I used to have Restless legs so bad I would be in the bathtub, super hot water, 6 to 8 times a night. Had a sleep study 15yrz or so ago and they said my legs went crazy. They were all over the place. It took me 20 yrs and a lot of trials but I found a med that works pretty good. I've had numerous eeg or emg's, with the needles, results were not good for legs and arms. The last one the dr said it was caused by my sarcoidosis, I've had eight back and neck surgeries which is what I always blamed. He said no. I have 5 immune diseases, inherited from my Mom. Needless to say I'm 60 now and have battled this crap since 1983. I'm tired. I apologize for running my 88mouth, I'm usually on the chronic pain group, but I've been down for about 3 months and am just now getting back on. I saw your post and thought we had something in common. Does it sound close to your problem? I don't know but would like to hear your story. My user name is briansr. Cl9ck on my namm and we can talk privately, or just pozt, I should catch it!! briansr

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Replies to "Yes, I believe I am.If I move my toes it feels like there is mud with..."

Welcome back @briansr. So glad you're able to rejoin the conversations on Connect!

So glad to be back Ms. Young. Right now still fighting a lot of battl4s on all fronts. Spinal, 3+ months and still going on one of my immune diseases. Low grade fevers to where I'm burnig up, and a bunch or problems with my pain doc getting scare of DEA. All drs will start soon even though nothing has passed at the stse or federal level,.YET. Look out for September and November. At the federal level. States will follow suit. Get back on when up and mobile. Nice hearing from somebody.out there. I feel like I'm fighting alone but I know that is not true. Not enjoying any part of life right now but I have faith. This whole year has just been a major bummer. Talk to you soon. briansr