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Please help ! Numbness hands, feet!

Brain & Nervous System | Last Active: Aug 29, 2023 | Replies (15)

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@californiazebra

@mellie88 So sorry to hear about all of your issues. So frustrating when doctors don't have answers or show much concern. Negative tests don't resolve your suffering. Your issues do seem to have an autoimmune vibe to them. I'm just throwing something out there for you to read up on and see if it fits at all -- research scleroderma CREST symptoms. Your ANA is normal though, but you never know. Some bodies are more sensitive to minor changes than others. Just hoping to help you with questions for your doctor.

Your nerve test results will be interesting. My son and I both used to get random swelling in our hands and feet that appeared as red mottled as you mentioned. It caused instant painful itching and could be relieved through elevation (try holding arms straight up for a few minutes). We both have hereditary neuropathy with pressure palsies (genetic and rare). My son and I also both get muscle weakness (muscle fatigue really) that comes and goes. I even have it in my chewing/swallowing muscles making it challenging to eat most things without aspirating or getting food stuck in my throat. Your other issues don't match ours, just stating those issues are neurological for us. Your muscle weakness also makes me think of myasthenia gravis, but again, the other symptoms don't match up. I hope you get some concrete answers and relief soon.

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Replies to "@mellie88 So sorry to hear about all of your issues. So frustrating when doctors don't have..."

I was wondering about Scleroderma and also Sjogrens (my dad has it). I’m also wondering about Guillain- Barre because I was in the hospital at the end of June and I’m wondering if I picked up a virus. I swear I’m getting worse, too. Thank you so much for caring. I truly appreciate it.