One of my biggest frustrations is the fact that the main stream medical community seems to have little interest in working on treatments, remedies, cause and affect, cures etc. In my quest the last five years I have only had minimal interest shown by the so called specialists, I.E. Neurologists, major medical centers etc. in helping me with my issues. My local GP put in more effort than the neurologist that I was referred to and one major nationally renowned hospital even declined to even see me or review my case. If you have neuropathy everyone pretty much writes you off as a lost cause and you are told so in so many words. Sorry but nerve issues are really hard to treat, would rather concentrate on the illnesses, surgery etc. that we know we can be successful, makes for better PR. Easy to become disgruntled and depressed.

Amen to that Tim...one of my biggest frustrations also and why I started being my own advocate. I don't have the pain you have with my small fiber peripheral neuropathy but the numbness was getting worse until last year when I started taking a specific group of high quality (and over the counter) supplements. I started in September last year and the numbness was just below the knees. After a couple of months it was just above the ankles. I haven't made any more progress with the numbness but at least it's not getting worse so it is working to repair the nerves. It may not work for everyone but I had tried everything else and neither my primary care doc or the neurologist had anything that works for numbness. The problem with what they prescribe for pain - lyrica, gabapentin, etc.. can be worse than the neuropathy with their side effects and almost continual need to keep upping the dosage. Others in the same group have been on those pain drugs and have been able to taper off once they are on the full supplement protocol. I can only attest to the help I have received and that I too am a skeptic so very wary of scams. Whatever you do, don't give up hope. Keep doing your own research and working with your doctor to hopefully find something that helps with the pain.

One of the most frustrating areas in my treatment is the fact the NOBODY that I have seen in my treatment has done a thorough foot inspection, I E bone structure, scans, x-rays to see if there is anything structural that is adding to my pain issues. Other than look at my feet for sores, wounds etc., that is it. Metatarsal issues or the like could be an issue but who would know? Also any secondary pain med I take for muscle, lower back pain etc. seems to only aggravate/intensity my neuropathy pain. Can't win. <br><br>

Sorry if this is a dumb question - have you seen a doctor that is a specialist in the foot area? I know Rochester Mayo Clinic has a pretty good reputation in the hand clinic downtown and I think it's the same for the feet but I don't know anyone that has seen them. I've been to the hand clinic for carpal tunnel.

Mayo was where I was denied even an appointment.<br>

Sorry to hear that.