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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6026)

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@michael3147

I contracted neuropathy midway through chemotherapy treatment last year. Initially, the symptoms were mild although annoying. I completed chemotherapy in November 2022 and the symptoms have progressively worsened. It affects both my hands and feet causing discomfort, imbalance and difficulty in walking and in using my hands and fingers for even simple tasks. I have tried a number of treatments including acupuncture, medication, both conventional and Chinese. I also entered an expensive treatment clinic that uses LED light therapy, bio electric impulsing, ultrasound and stem cell injections. I exercise regularly and maintain a balanced diet. After 8 months my symptoms have only very marginally improved. My oncologist referred me to a Neurologist who told me that I should wait until 12 months after my last chemo treatment and then reassess then. I am very frustrated with my condition and the inability to find treatment that provides any noticeable relief.

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Replies to "I contracted neuropathy midway through chemotherapy treatment last year. Initially, the symptoms were mild although annoying...."

Welcome @michael3147, I'm sorry to hear that your chemo treatment caused your neuropathy. There is another discussion you might find helpful:
--- Chemotherapy-induced neuropathy: What helps get rid of it?:
https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/.

Here are a couple of resources you might also find helpful:
--- Managing Neuropathy - Do You Have Nerve Damage?: https://www.cancercare.org/chemo-side-effects
--- Webinar: Chemo-Induced Peripheral Neuropathy: https://www.foundationforpn.org/webinar-chemo-induced-peripheral-neuropathy/.

I think I would be totally frustrated myself being told to wait for 12 months after my last chemo treatment and then reassess my symptoms. Has your oncologist for doctor suggested any ways you might manage the symptoms?