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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)Comment receiving replies
I hope everything goes well with you! Mine hasn’t progressed much in the past couple years… feet numb, burning, tingling, etc. Some days are worse than others. I’ve also got a strange rash on the back of both ankles which no Dr says they have ever seen before (pics attached). It’s always there but some days worse than others… doesn’t hurt and I don’t see a correlation between the neuropathy severity at the time and the rash. Also, as I said, my legs (thighs) feel heavy and tired. Vascular (arterial) study was good but they have ordered a veinous study to see if that is okay. I get health care through the VA so things don’t proceed quickly. My biggest fear is it spreading up through my body. Not 100% sure this started right after the shingrax vax as memory is hazy but it seems like it’s possible based on what I can remember (for example I remember going away for my 50th b-day and definitely NOT having feet issues and then I got the vax and now here we are). I only got the J&J COVID vax once and have never had COVID.
Replies to "I hope everything goes well with you! Mine hasn’t progressed much in the past couple years…..."
I would like to talk with the person that posted the picture of the rashes on legs. Please private message me. Thanks
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Hello @jaymew, I would like to add my welcome to Connect along with @roslyn2314 and others. If you haven't already reported the vaccine side effects, you might want to consider doing that. Here's is the page if you would like to report the side effects:
--- Report an Adverse Event to VAERS: https://vaers.hhs.gov/reportevent.html.
A couple of good sites to learn more about neuropathy:
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.
My legs have always felt heavy since being diagnosed with neuropathy in 2016 but I had the neuropathy numbness symptoms starting in my toes and feet for 20+ years. A few years ago I was diagnosed with lymphedema and have to wear compression socks. I've had discolored legs for quite awhile but not any rashes. I did see this article that sounds similar to your rash.
--- What Is Golfer's Vasculitis?: https://www.verywellfit.com/leg-heat-rash-golfers-vasculitis-3435796.
Do you think this might be a possibility?