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Shingrix and peripheral neuropathy
Neuropathy | Last Active: Mar 12 1:36pm | Replies (530)Comment receiving replies
My case is the same . Idiopathic and now the neurologist has diagnosed CIDP after 9 months of tests both blood and nerve conducting and waiting for follow up appointments.
He has advised to get IVIG treatment to stop the progression as it’s an immune response.
However I went downhill from being active after the Shringvax injection…Also Covid vaccinations were in full swing 5 of them .
Nothing can be proved and I’ve read that Doctors don’t like making a fuss over vaccines as it’s a controversial subject.
It it what it is anyway . There are so many forms of Neuropathy..At first my diagnosis was small and long fibre Neuropathy now it’s Chronic Inflammatory Demyelating Polyneuropathy…5 days in hospital coming up next week then monthly for as long as it takes..
I hope your diagnosis has a better outcome…good luck.
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I hope everything goes well with you! Mine hasn’t progressed much in the past couple years… feet numb, burning, tingling, etc. Some days are worse than others. I’ve also got a strange rash on the back of both ankles which no Dr says they have ever seen before (pics attached). It’s always there but some days worse than others… doesn’t hurt and I don’t see a correlation between the neuropathy severity at the time and the rash. Also, as I said, my legs (thighs) feel heavy and tired. Vascular (arterial) study was good but they have ordered a veinous study to see if that is okay. I get health care through the VA so things don’t proceed quickly. My biggest fear is it spreading up through my body. Not 100% sure this started right after the shingrax vax as memory is hazy but it seems like it’s possible based on what I can remember (for example I remember going away for my 50th b-day and definitely NOT having feet issues and then I got the vax and now here we are). I only got the J&J COVID vax once and have never had COVID.