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PN? What's good about it?

Neuropathy | Last Active: Aug 16, 2023 | Replies (16)

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@julbpat

Oh yes, the part about being able to work. There is someone in my life who knows my finances are precarious, and she sometimes mentions great ideas she has about jobs I could apply for. I am able to get up, shower, dress, put on some make-up most days - so it makes sense to her that I can get a part time job in a little shop, etc.. She does not know how many days my plans fall apart, or how I creep around in the mornings, waiting for my painful limbs to loosen up. The days I carefully calculate how many consecutive errands or appointments I have. The days my shower happens at 4 pm or, not at all. The nap breaks. Believe me, if I could be working, especially in my chosen field, I would! But I don't think many employers would accept my schedule. Computer work from home? About an hour of day of typing is about all my hands can take. And I make frequent stops to stretch and rub my hands. My neck and shoulders hurt, just from sitting to check email and balance my check-book. A computer job would be tortuous.

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As you know, there are actually people who think being on disability is like hitting the lottery! Now, who wants a sudden 75% cut in pay? But they just don't know, and I pray they never have to find out. Those same people think that you're richer when you retire too, as if you're collecting a Social Security "bonus" on top your normal salary when you retire. (They'll learn that math soon enough if they haven't already). But in the spirit of keeping how this has helped us, since we have to overcome & ignore those who don't understand, we have proven to be fighters determined to stay as active as possible and work for the best quality of life we can make for ourselves!