@molly48823 my diagnosis is also ANCA positive microscopic polyangiitis vasculitis. I was hospitalized following a case of COVID with my lungs hemorrhaging and multiple organ failures including my kidneys. My medical team has been great, and I have seen a nutritionist, I have a Cardio-pulmonary specialist, Rheumatologist, Nephrologist and a Heart & Vascular specialist. The hard thing is that they can't give me any definite answers because they say there is still a lot unknown about the disease and that is seems to manifest differently in patients. I have blood work done every 4 months before my infusion and then again after the infusion to ensure the ANCA is being managed. Unfortunately, I've also developed diabetes and fibromyalgia during this journey. It has only been a year since being diagnosed via kidney biopsy. I'm sure I will learn to manage the pain and fatigue so that I can live a mostly normal life. Right now my family & I just trying to understand what it all means for us. Thanks for the facebook link, I will check it out.