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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hello @weezie4u2 and @llevy0081, I would like to welcome you both to Connect. It sounds like you are both looking for answers for your neuropathy symptoms. I can tell you that you are not alone. Nobody likes having neuropathy and regardless of all of the advertising you see, there is no one cure fixes all or relieves all. We are all patients here on Connect sharing our experiences and sometimes success along with things that have helped us get through the day. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

You may find it helpful to look through the list of discussions started by other members here in the Neuropathy Support Group to see if any of them sounds similar to what you have experienced - https://connect.mayoclinic.org/group/neuropathy/.

@weezie4u2, You mentioned having pins and needles in your feet, have you been diagnosed with neuropathy?

@llevy0081, You are wise to be cautious when viewing some of the businesses offering so called neuropathy cures. I went many years before seeing a neurologist because they told me there wasn't anything they could offer me to help with the numbness. Then when I was worried about the progression and decided I needed to see the neurologist. I was diagnosed with idiopathic small fiber peripheral neuropathy and the answer from the neurologist was the same, nothing we can do, which is when I first found Connect. In retrospect, I would do it again just because knowledge is power. The more you learn about your condition and possible treatments that may offer some relief for your symptoms, the better quality of life you can have.

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Replies to "Hello @weezie4u2 and @llevy0081, I would like to welcome you both to Connect. It sounds like..."

To Weezie4u2, Yes, I have been diagnosed with neuropathy by my general practitioner, I had the tests done at the hospital. He didn't recommend a neurologist, and I haven't seen one. Thanks.
To John, l really don't know whether to see neurologist or not. It sounds as if he is just going to tell me there is nothing they can do. The hospital tests showed that I had a very bad case of it. I've tried Gabapen, it helped a little, but made me have cramps really bad. It seems pretty hopeless. Causing a little depression, which I've never experienced before. I have a very unsteady walk, even with a cane, and the pain is very disruptive. Hoping someone can come up with something that at least relieves it. Thanks