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← Return to PN? What's good about it?
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Neuropathy | Last Active: Aug 16, 2023 | Replies (16)
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Great lesson! We’d be fools not to exploit and savor the good days we have! I have to make sure I don’t overdo it on those days though. Many people just have no idea of our illness, our inability to control consistency. Most people don’t understand our careers either and what we need to perform. They think if your brain and mouth work and you can drive, then you should be able to work in an office all day (without hands to work on a computer, people to help you carry things between meetings and carry your bags when you must travel). But we can’t afford to exhaust ourselves with worry over people who can’t accept what they’re not capable of knowing about.
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Oh yes, the part about being able to work. There is someone in my life who knows my finances are precarious, and she sometimes mentions great ideas she has about jobs I could apply for. I am able to get up, shower, dress, put on some make-up most days - so it makes sense to her that I can get a part time job in a little shop, etc.. She does not know how many days my plans fall apart, or how I creep around in the mornings, waiting for my painful limbs to loosen up. The days I carefully calculate how many consecutive errands or appointments I have. The days my shower happens at 4 pm or, not at all. The nap breaks. Believe me, if I could be working, especially in my chosen field, I would! But I don't think many employers would accept my schedule. Computer work from home? About an hour of day of typing is about all my hands can take. And I make frequent stops to stretch and rub my hands. My neck and shoulders hurt, just from sitting to check email and balance my check-book. A computer job would be tortuous.