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Anyone out there on Guanfacine?
Post-COVID Recovery & COVID-19 | Last Active: Sep 26, 2024 | Replies (65)Comment receiving replies
Hello to all our dear members. As I continue to worsen after 3yrs of dealing with Covid twice ('20 and '21) and currently VERY ill and in indescribable and unbearable pain throughout my whole body.
Horrific symptoms of the nervous system (24/7 fight or flight+) fear, trembling, down now to 90 lbs and practically unable to function, but try to remain strong; albeit, not sure I can on like this and so very frightened w/no help with any doctor. Even my PCP just dropped me because I went to see a DO for another opinion. I also need surgery for my Inguinal groin hernia, which in itself is painful, but unable to proceed due to my current state. I can't stop crying and just want to jump out of my skin due to the terrible sensations, burning, tingling and pain, I know most can relate.
I wanted to try and create this topic. Please excuse any typos given my current state of health.
For the folks using Guanfacine and/or Naltrexone, are you having any success?
Hugs to all. I want to thank everyone from the bottom my heart for all your love and support.
Replies to "Hello to all our dear members. As I continue to worsen after 3yrs of dealing with..."
Here in Northeast Illinois I have access to a Pain Management clinic, part of a large hospital group. (North Shore). I have had two Stellate Ganglion Nerve Blocks months apart and they have significantly reduced the overall sensations. Not a cure, but has helped a lot. A daily Protein drink, like Ensure or Boost, would also provide some nutrients. Long CIVID is an ongoing nightmare for so many.
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LDN (naltrexone) plus methylene blue pills and B3 pills 3 times a day has helped my long COVID. Also physical therapy . Try to find a good DO or good Alternative Dr. that has kept up with things and thinks outside the box!