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Second Nissen Failure... what are my options?

Digestive Health | Last Active: Aug 20, 2023 | Replies (36)

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@terrijwright

I had a Nissen in Nov of 2021. The symptoms actually got worse after the procedure. I had a redo in Feb of 2023. The redo took between 6 and 7 hours. My stomach was basically wrapped around my stomach and it took 2 hours just to eliminate the adhesions. It was a mess. I also had a pylorplasty at the same time due to gastroparisis, which I think happened from the initial nissen procedure.
In fact, my entire gastrointestinal system is non-functioning. I have intestinal motility issues as well and take large amounts of laxatives daily. It’s like neuropathy of my entire gastrointestinal system.

The nissen redo worked great for 6 months. Then about 2 weeks ago, I started feeling some burning in my throat and below my sternum. Not as severe as before, but there. I had a repeat endoscopy yesterday and unfortunately the nissen has slipped and my esophagus is inflamed and in worse condition than a year ago; now grade D (was grade B last year). The gastroenterologist says my options are more limited now - possibly a gastric bypass. This is scary to me. I am 60 yo and weigh 130lbs. Has this happened to anyone else? What are my options?

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Replies to "I had a Nissen in Nov of 2021. The symptoms actually got worse after the procedure...."

Hello,
I have also experienced 2 Nissen failures. The first went at 1.5 years, and the second after only 8 hours while still in the hospital recovering from the procedure. It was a chain of events that could not have been predicted, and one for the books! I'll address that "nightmare" in a separate post.
Sounds like you need a conference call with some of the top minds who do their best work when challenged. And yours fits the bill.
Gather all your relevant medical records, include a one page bio, and submit to chiefs, dept. of gastroenterology at Stanford (Palo Alto), UCSF Medical Center (San Francisco), Johns Hopkins...and so on. Concentrate on teaching institutions because that's where innovative medicine tends to originate.
Anyway, there's a solution out there, so keep moving forward.