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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Replies to "Thanks again John I will ask about the patch. Do you also have heavy legs and..."
I have been on a fentanyl patch for 15 years due to a failed neck surgery. I have been cut down from 75mcg every 3 days to a 12mcg and a 25mcg. It still helps me but not as well. I have neuropathy that effects my calves and feet. I also have a type of neuropathy that effects my central nervous system and has wrecked my blood pressure. It is always dangerously low. Lately it has been really low and I have to take midodrine 5mg twice a day and sometimes 3 times. It makes me very dizzy and then everything goes white and I will passout if I don't get to the floor and sit down. If I can't I will fall. It also effects my temperature control. I am either cold or hot. No normal. Does anyone else have this? It is very scary. But back to the fentanyl patch they help alot and I have never had any side effects. The lower dose is a dissapointment for all my pain. Why do the doctors treat us like we are drug addicts when we don't abuse them and they help? The opioid crisis is not from people who are under a doctors care. Why do we have to suffer because the drug addicts abuse them and overdose on them? I don't even feel any different when I'm on them, I just don't have as much pain. It's really not fair to us that need them for horrible pain.
You do need a cane for off balance walking or can have bad fall. Might<br />
even need a walker. I have to use one or the other.<br />