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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@johnwburns

I'll post something after the visit on Thursday. All I'll get is a baseline on how bad things are from an emg but possibly a treatment plan. I'm finding that rheumatologists don't like to treat the worst problems caused caused by Sjogren's due to the poor chances of improvement. I've tried two dmards, methotrexate and leflunomide, with little success and am hoping that this doc will give mycophenolate a shot. The worst thing about neuropathy when it passes a certain point is the gait problems, trouble walking. Anyway, thanks. I'll pass on what I find out.

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Replies to "I'll post something after the visit on Thursday. All I'll get is a baseline on how..."

I was diagnosed with chemo induced neuropathy. It actually started after my fifth treatment. I was checked into the hospital for a full week of 24hr drip of chemo every 20 days. I have severe neuropathy and am on 2400 Mg’s of gabapentin a day. This is the only thing that allows me to function. It does make me dizzy but at least I can walk and live a reasonable life.

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