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Hammertoe Surgery and Neuropathy

Neuropathy | Last Active: Feb 25 5:34pm | Replies (39)

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@njed

@dbeshears - When I was first getting tests for PN, my doc sent me to the University of PA to see a neurologist who specialized in genetic testing. On initial visit, one of his questions was did I have anyone in my family with hammer toes. I said yes, grandmother on mom's side, she had one hammer toe on each foot. My mom also had one. I do not have hammer toes but he did blood test for CMT, came back negative. Could that be a hint for cause of PN?

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Replies to "@dbeshears - When I was first getting tests for PN, my doc sent me to the..."

I asked my prior Neurologist, actually from a recommendation you made several months ago. He basically said my EMG says Axonal Sensorimotor PN, so that tells all we need to know, that it meant no CMT, no SFN. No need for CMT testing, no need for skin biopsy to test for SFN, and no need for an MRI to see if it could possibly be anything else contributing. Basically didn’t matter. At the same time, my SC Medical University neurologist recently tried to tell me that my extreme cold & heat feelings in hands and feet that came immediately with my sudden PN was not from my PN! I had to argue that one with her. Geez, how many folks on here talk about that? I would think it’s Neuropathy 101! She also didn’t think my inability to sweat was attributed to my PN. It confused me why she wanted so much to convince me they weren’t, when I know darn well. She was rushed, and not prepared to hear my symptoms being different than her standard list; it makes me really believe that the reason was because those two symptoms aren’t as common with the Axonal definition she had vs. SFN perhaps. Her final notes did list them as I reported, but I wonder what she was thinking.