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Anyone with an insulinoma have only therapies instead of surgery?
Neuroendocrine Tumors (NETs) | Last Active: Aug 14, 2023 | Replies (21)Comment receiving replies
That’s good news. Sounds like it was caught early. Like I said we all have different types of NET’s in different stages.
I’m considered stage 4 or stage 3. It seems different Doctors use different terms.
I get MRI’s and CT scans every 3 months for the last 18 months.
Having read these posts for awhile now have been encouraged buy others that have lived for years with NET.
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So sorry to hear about your stage. I have been trying to educate myself and have been doing lot of reading. I read somewhere about a new trial. The info was dated 23 May 2023 so it is a pretty new trial. The question I had opened is what is the newest treatment for pancreatic cancer. It read a personalized mRNA vaccine against pancreatic cancer created a strong anti/tumor immune response in half the participants. The vaccine will soon be tested in a larger clinical trial. Don’t know if this might help in your situation but just wanted to pass it on. Wanting all the best for you.