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Has anyone been diagnosed with Anca vasculitis GN with DAH
Autoimmune Diseases | Last Active: Aug 18, 2023 | Replies (16)Comment receiving replies
@SusanEllen66 I know you are right. It's not that I fear dying, I just don't won't to miss out on my children's and grandchildren's lives. We are a very close knit family and I don't want anything to ever change that!
Replies to "@SusanEllen66 I know you are right. It's not that I fear dying, I just don't won't..."
@bagill003 you have a good sized family! That’s wonderful.
I think I have had fibromyalgia almost forever. Really. Perhaps 50 years. I have always been very sensitive to touch. When I was hugged by anyone it was painful. I didn’t know why, so I tossed it off until about 15-20 years ago. Then I started reading about fibromyalgia. It was an aha moment. I talked to my doc and he confirmed that I had it.
Vasculitis started the end of 2015. In March 2015 I was sick with the flu and bronchitis. By November I had a swollen, painful lump on my leg. The dermatologist did a biopsy and diagnosed me with Polyarteritis Nodosa.
Now I am being tested and treated for another rare autoimmune disease. Chronic Inflammatory Demyelinating Polyneuropathy is giving me many problems and will continue to do so…it’s a form of neuropathy that is a “cousin” to MS. I am now using a cane and walker for safety…
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@bagill003 oh I really do understand that.
My daughter had 3 children. Five years ago she died unexpectedly. The kids live with dad and are doing well. However, when one of them has a birthday or graduation I feel so bad because she is missing it.
Of course, they miss her, but they keep looking forward..