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Yes I am theraphy, yes I still have chronic nerve pain from my neck to my feet! My stomach feels like it’s wrap with duct tape, I have to cath to piss, and only because I went plant base only do I have Better bowl movement, my sexual functions cease to work, I hate my life now, I went to Panama and spent $30,000 for stem Cell and so far nothing! And not one person on my medical team have offered me any hope of relief! I been working my ass off to come back from being completely paralyzed! People tell me to be grateful you can now walk, but what about the chronic pain I live with from the moment I wake up to the moment I go to sleep! Why would anyone want to suffer through this, I am just saying if all this is a place to bitch and there is no solution for people what’s the point of this support group! What you want to pat me on the back and tell me good job, before this happened to me, I had the woman of my dreams, I was surfing waves over six stories and in the ocean 6 hours a day doing things I loved to do! Now I walk like a cripple and suffer from morning to night!
Not the way I want to spend the rest of my life! I will fight a while longer but if change can’t happen then I will move in and people should be alright with it!
Replies to "Yes I am theraphy, yes I still have chronic nerve pain from my neck to my..."
Pretty bad stuff. Terrible what you have gone through. My piddling chronic pain pales in comparison to your situation. My only recommendation is tovseek a pain specialist who is involved with the morphine pain pump. You have a trial during which the doc injects morphine(very tiny dose) into the space around the spinal cord. Then you wait for about 15 minutes or so to see if the morphine quiets and calms the nerves coming out of the spnal cord. They may have to do a second trial with a different med if the morphine doesn't help, as was the case in my trial. Within five minutes of getting the second shot (a week later) I could feel the pain draiing out of my lower back, buttocks, and feet. So, I went ahead and did the permanent implant. Now, to be honest, the permanent implant has not worked as well as the trial, but still provides decent relief. That's about all I've got for you. Except that I will say a sincere prayer that God directs you to the right doctor to get the help you need.
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Hi, @konrad123 - Like other members, I am sorry to read of your struggles and situations. Sometimes, it is difficult for others to articulate empathy when someone is struggling so deeply as yourself. Hopefully their kind words and encouragement offer some comfort during your tough times.
Have you looked at any of the discussions in the Depression & Anxiety group - https://connect.mayoclinic.org/group/depression-anxiety/ ? You questioned what these groups are good for if only for a place for members to vent. Sometimes, that is all a person can do. Mayo Clinic Connect is a collection of patients from across the world trying to make sense of their situation and get comfort through meeting others with experiences similar to their own. If you'd like to seek a second opinion, you can always contact the Mayo Clinic appointment office, http://mayocl.in/1mtmR63.
Like @jenatsky mentioned, if you are feeling suicidal, #988 is a number to call in the worst of times. I personally admire your fight. We all deal with some sort of chronic pain in this group, but not all experiences are created equal. The community is here for you, even if it is to vent your frustrations.