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Anyone with an insulinoma have only therapies instead of surgery?

Neuroendocrine Tumors (NETs) | Last Active: Aug 14, 2023 | Replies (21)
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@pampolo481

I had 2 MRIs over a 2 year period - last one in Nov 2022. They were both negative. I had an endoscopy EUS ultrasound done in Jul 2023. It showed up positive for a NET. They did a biopsy from the ultrasound procedure and it showed up Stage1 NET. I just had a PET scan done last week and it showed negative for metastatic. For me, the ultrasound found it were the MRIs did not.

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lastround | @lastround | Aug 15, 2023

That’s good news. Sounds like it was caught early. Like I said we all have different types of NET’s in different stages.
I’m considered stage 4 or stage 3. It seems different Doctors use different terms.
I get MRI’s and CT scans every 3 months for the last 18 months.
Having read these posts for awhile now have been encouraged buy others that have lived for years with NET.

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